What a day . No beds on ward so spent the day in the admissions lounge . No one knew what each other were doing but the upshot is eventually had an MRI and a chest X-ray , results not back yet. Had a chat with a registrar and feel a lot more informed about what the tests were for, what the possible plans are. Laparoscopy tomorrow afternoon then the big chat .
This is my blog about my battle with advanced, aggressive and rare form of bowel cancer, called Signet ring cell Carcinoma. Currently waiting to hear if I can have specialist surgery and treatment (CRS + HIPEC) at Basingstoke, also known as the Sugarbaker Technique or MOAS (Mother of all Surgeries). My friend Amy kindly set up a Crowdfunding page for any supplements, treatment etc needed or anything related to my care https://www.justgiving.com/crowdfunding/tracykaye
Monday, October 9, 2017
Sunday, October 8, 2017
Bucket list
Tracy's Bucket List
Take the kids to Disneyland
See NY Rangers play at Madison Square Gardens
See the following bands and go backstage :
NIN
Depeche Mode
Incubus
Faith no more
Go to Harry Potter studio tour
Smash a building with a wrecking ball
Go glamping in the Lake District
Watch the sunrise and sunset in one day
Attend a murder mystery
See a musical in London
Sit on the bench with the Panthers during a game
Read the top 100 banned books
Drink a pint of Guinness in Ireland
Have afternoon tea at a fancy hotel in London
Visit the Tower of London
Visit Barley home of the witch trials
Go on a second honeymoon to Stratford
Watch England play a test match
Go to Reading festival or Download
Go to Wimbledon
Well here we are at the hotel and have been to the ward . Rather disturbing as lots of old people looking extremely sick - really hit home how mammoth it all is. Think both of us wanted to hightail it out of there . So got to be there at 10 for MRI , big girl pants back on in the morning .All still feels quite dreamlike ( nightmare ) and unreal , in the car we were talking about how insane this is , to get a rare aggressive cancer that's already taken root in so many places , how there really is no positive spin to put on it as it truly is as bad as can be
Ordinarily being in a hotel just us would be so exciting , whilst it's certainly nicer than being on a ward both struggling to enjoy it . Desperately missing my babies, think will eat as no breakfast allowed tomorrow then head back in sand tonight
Ordinarily being in a hotel just us would be so exciting , whilst it's certainly nicer than being on a ward both struggling to enjoy it . Desperately missing my babies, think will eat as no breakfast allowed tomorrow then head back in sand tonight
Thursday, October 5, 2017
Basingstoke
Got a call today asking me to go down to Basingstoke on Sunday evening for a MRI scan and possibly a laparoscopy then coming home on the Wednesday . Nanny and grandad are coming up to look after the munchkins but it's a step forward ,albeit a scary one
Wednesday, October 4, 2017
Please stop asking about Basingstoke , if I have any news I will share it here . Even if I do get the go ahead it's not as straightforward as people think - it's major surgery and we will make the decision if and when .Going on about it is really getting to me and I feel awful enough with this cold as well.
On a positive note thank you to our lovely friends for meals, cold relief and hugs xx
On a positive note thank you to our lovely friends for meals, cold relief and hugs xx
Sunday, October 1, 2017
Grouchy
Feeling grouchy today. Ive got a cold and you know how crap that is even when everything else is ok. Constant upset guts. Izzy was up all night coughing and although she was in Chris excellent hands I felt crap I couldn't look after her. More bad mummy and wife thoughts as I've snapped at them all day
No news from Basingstoke , will post here when there is. I don't want to think about it. They could say no and I'm not investing time and more worry ( it terrifies me) into it until we know either way. So please forget about it for now and stop talking about it. Plan B is still a possibility
Going to attempt some sleep and face the world afresh tomorrow
No news from Basingstoke , will post here when there is. I don't want to think about it. They could say no and I'm not investing time and more worry ( it terrifies me) into it until we know either way. So please forget about it for now and stop talking about it. Plan B is still a possibility
Going to attempt some sleep and face the world afresh tomorrow
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