Wednesday, October 25, 2017

In the words of The Offspring


Ladies and gentlemen
Welcome to the disclaimer
That's right the disclaimer
This American apple pie institution
Known as parental discretion
Will cleanse any sense of innuendo or sarcasm
From the lyrics that might actually make you think
And will also insult your intelligence at the same time
So protect your family.
This album contains explicit depictions
Of things which are real.
These real things are commonly known as life.
So, if it sounds sarcastic, don't take it seriously.
If it sounds dangerous,
Do not try this at home or at all.
And if it offends you, just don't listen to it.
Songwriters: Dexter Holland / Greg Kriesel / Kevin Wasserman / Ron Welty
Disclaimer lyrics © Round Hill Music Big Loud Songs

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PICC or George Weasley

I had my PICC line put in today. I was really nervous and said to the surgeon I've had 2 babies this should be a breeze. Her reply was I had chosen the babies and had no choice in this which makes a big difference. The surgical team were fab, kept me talking so I was amazed when she said it was all done! It's sore tonight like any cut/wound but at least it means no more canulas . Ju has ordered me some pretty covers - hospital just put a tubigrip over the dressing and they always look grim. No swimming due to infection risk and I have to wear a cover over it in the shower
More difficult to deal with is the change in diet - many staple foods like veg are simply no go and things like onion crop up in everything. It sucks but if I can avoid blockages and inflammation it's worth it. The paracetamol and buscopan can cause constipation so yesterday and today I tried to manage on half the dose but the pain won out so back to the full monty. It seems insane to have so much pain compared to three months ago but Delores is aggressive and has spread so I guess it makes sense
Calling the PICC line George as he had a fundamental part in Umbridges downfall

Next stop in the oncologist Friday and chemo nurses to prepare for the first session. Worked out that the Panitumab alone is over 2 grand a dose , it specialises in advanced colon cancer and metastases. I hate that I now know what ascites are , the omentum... It's all so scary and the more we discover the worse the outcome looks BUT as I said to the oncologist I am not average and we are determined to give the bitch a good kicking even if a cure is so unlikely we can shrink her and stop her growing

Tuesday, October 24, 2017

It’s chemo time

Tomorrow I get my PICC line fitted ready to start chemo on the 2nd. Terrified but glad we are finally getting on with the treatment . Ryan’s worried his friends will laugh at me when my hair falls out but I think I’ve managed to reassure him that it’s nothing to worry about and I won’t be upset by it

Sunday, October 22, 2017

Can’t sleep. The last 48 hours in particular have been so fucking horrendous , thank god for my parents , sister and friends for pulling me through it when I was on my own . Incredibly angry my husband and children were taken away from me when I needed them most .
I won’t be the one explaining in years to come when I’ve gone that mummy wasn’t in those photos ( which I don’t want to see )because she was ill in hospital with cancer . Think that’s awful? Welcome to my fucking world right now

Friday, October 20, 2017

Here again

in city hospital . On Wednesday I started being sick and had awful pain so we went to docs and they sent me to SUC who deal with oncology . An X-ray showed a borderline blockage so I was on nil by mouth to give my bowel a rest . Lots of morphine later yesterday lunchtime they decided it was most likely to be severe constipation and to try eating and drinking again. Lots of laxatives later and I did a poo this morning , hurray ! Also saw my oncologist and oncology nurse who were lovely.   Had a CT to see if def poo and not Dolores causing problems by making kinks in my bowels. If all is ok we can process with chemo in the next few weeks . They will put a PICC line in which saves doing a canula each time . They are starting with a mix of irinotecan, panitumumab and 5 fluoluracil. Unfortunately the average prognosis even with chemo is 12-18 months but I’m not average.
I’ve got to stay in for the weekend so they can keep an eye on me. As long as the pain is under control and I’m not sick they are good signs  . I’ve got a special diet to follow that’s easily digestible so have a list of things I can’t eat that are hard to digest - unfortunately it includes many of my favourite veg . On the plus side I can eat cake !

Saturday, October 14, 2017

So the letter came from Basingstoke today and it's  there in black and white . Planning Ryan's birthday and part of me is wondering if this is the last of my babies birthdays I will be here for
I've got an appointment on Friday with oncology to get chemo in place so big girl pants on and try to push the nasty thoughts away. That bitch Delores is all over my abdomen so we need to find a way to get rid

Wednesday, October 11, 2017

The scores are in

 basically Basingstoke is a no go as Delores is in the small  bowl which cannot be removed ( the idea is a complete cytorrduction where they remove all of the cancer in one go) as it is the odds weren't that good for me anyway as only 1 in 5 can be cured , it often returns and it means over 12 hours in surgery etc
So we go for chemo in Nottingham . Apparently aggressive cancers generally respond well so keep everything crossed as we climb the next mountain